The New Paradigm of Disability
A Bibliography
It has been thirty years since the beginning of the contemporary Independent Living Movement. It was a time when the previously separate groups of people with disabilities began to collectively fight for the respect, and demand the civil rights, enjoyed by mainstream America. There are now the first generation of laws protecting the rights of disabled people. Access to employment, transportation, education, and public accommodations is now mandated by Federal law for disabled people. More than ever people with disabilities are participating in American life. But, the mainstream media barely recognizes that disability is an inherent, integral, and inevitable component of the human experience. Nor do newspapers, television, and movies portray the role that society plays in marginalizing and stereotyping disabled people. More often the antiquated myths and stereotypes about people with disabilities are the norm.
From disabled activists using civil disobedience for social justice to university professors with disabilities researching and teaching disability studies, a new, clearly articulated analysis of the disability paradigm has emerged and is taking root throughout the nation and around the world. This new perspective on the human condition needs to be integrated into mainstream media.
Following on the successful Disability Messenger project of the President's Committee on Employment of People with Disabilities this bibliography is intended as a catalyst to further articulate, amplify, and promote this new perspective of disability to allies, potential allies, academics, and policy makers and the media. This bibliography is further demonstration of the power of a community defining itself and articulating its members own collective and individual identity.
Description
This is an annotated bibliography of books organized by categories: Community/Culture, Disability Studies, Family, Children, & Relationships, History, Identity, Policy/Civil Rights, Children/Young Adults, and separate categories for Radio, Movies, WWW (Internet), Publications and Videos. The list is a compilation of recommendations from a diverse group of disability scholars and activists and other bibliographies. All of the entries illustrate an authentic view of disability using the new paradigm. Included is disability experience, identity, pride, passion, intellect, and community as we define it. The focus is on disability in the United States, but it also includes international perspectives.
Far too many of the books are no longer in print. Larger university libraries have many of these books in their collections. Also, you can use inter-library loan through most libraries to borrow them. Bibliofind.com and other on-line sources for used books are possibilities, as well.
This bibliography is updated regularly.
ABC Clio Companion to the Disability Rights Movement (ABC-Clio Companions to Key Issues in American History and Life) (1997) Pelka, Fred What Psychotherapists Should Know About Disability (1999) Olkin, Rhoda Claiming Disability: Knowledge and Identity (Cultural Front Series) (1998)
Linton, Simi Disability Is Not Measles: New Research Paradigms in Disability (1994)
Rioux, Marcia H. & Bach, Michael Missing Pieces: A Chronicle of Living with a Disability (1983) Zola,
I. K., Pride Against Prejudice: Transforming Attitudes to Disability (1991)
Morris, Jenny Enabling Romance : A Guide to Love, Sex, and Relationships for the Disabled and the People Who Care About Them (1992) Kroll, Ken Past Due: A Story of Disability, Pregnancy, and Birth (1990) Finger, Anne Question of David: A Disabled Mother’s Journey Through Adoption, Family, and Life, The (1999) Jacobson, Denise Sherer Beyond Affliction (1998) Block, Laurie By Trust Betrayed: Patients, Physicians and the License to Kill in the Third Reich (1990) Gallagher, Hugh Disabled State, The (1984) Stone, D. A. FDR's Splendid Deception, FDR Memorial Edition (1998) Gallagher, H. History of Disability (Corporealities) (1982) Stiker, Henri-Jacques & Sayers, William (Translator) Last Civil Rights Movement: Disabled Peoples' International, The (1989) Driedger, D. No Pity: People with Disabilities Forging a New Civil Rights Movement (1993) Shapiro, Joseph P. When The Mind Hears: A History of the Deaf (1984) Lane, Harlan. Why I Burned My Book and Other Essays on Disability (2003) Longmore, Paul K. Body, Remember: a Memoir (1997) Fries, Kenny Count Us In: Growing Up with Down Syndrome (1994) Kingsley, Jason And Mitchell Levitz Don't Worry, He Won't Get Far On Foot: The Autobiography of a Dangerous Man (1989) Callahan, J. Moving Violations: War Zones, Wheelchairs, and Declarations of Independence (1995) Hockenberry, John Nobody Nowhere: The Extraordinary Autobiography of an Autistic (1992) Williams, Donna Planet of the Blind (1998) Kuusisto, Stephen Seeing Voices; A Journey Into the World of the Deaf (1990), Sacks, Oliver Staring Back: The Disability Experience from the Inside Out (1998) Fries, Kenny Waist High in the World: A Life Among the Nondisabled (1998) Mairs, Nancy Disability Politics: Understanding Our Past, Changing Our Future (1996) Campbell, Jane & Oliver, Michael Exploring Disability Policy (1999) Barnes, Colin; Mercer, Geof; & Shakespeare, Tom Nothing About Us Without Us: Disability Oppression and Empowerment (1998) Charlton, James People with Disabilities Explain It All For You: Your Guide to the Public Accommodations Requirements of the Americans With Disabilities Act (1992) Johnson, Mary & the Editors of the Disability Rag Ragged Edge: The Disability Experience from the Pages of the First Fifteen Years of The Disability Rag, Shaw, Barrett Unexpected Minority, Handicapped Children in America, The (1980) Gliedman, J. & Roth, W. Disability Radio Worldwide, Parker, Jean On a Roll Radio, Smith, Greg Color of Paradise, Rang-e khoda (1999) Majidi, Majid Coming Home (1978) Ashby, Hal Finding Nemo (2003) Stanton, Andrew Freaks (1932) Browning, Tod Gaby, A True Story (1987) Mandoki, Luis Genghis Blues (1999) Belic, Roko Murderball (2005) Rubin, Henry Alex My Left Foot (1989) Sheridan, Jim Waterdance, The (1992) Jimenez, Neal & Steinberg, Michael Art, Disability & Expression Exhibit of VSA arts (1999) Moore, Stephanie & Jeffries, Chris Beyond Affliction (1998) Block, Laurie Assistive Technology (2001) Williams, John W. Disability History Dateline , Longmore, Paul, San Francisco State University Disability-Research Discussion List, Priestly, Mark, University of Leeds Disability Social History, Dias, Steve & Chadwick, Pat, Disability World Duncan, Barbara & Berman-Bieler, Rosangela DS-HUM Listproc, Holmes, Martha Stoddard, Georgetown University Interdisciplinary Bibliography on Disability in the Humanities, Doug Baynton JFA E-mail Network, Fay, Fred, Justice for All The Mouth, Voice of the Disability Nation, Lucy Gwin Ed. New Mobility, Disability Culture and Lifestyle, Tim Gilmer Ed. Ragged Edge, Mary Johnson Ed., Able to Laugh (1993) Dougan, Michael J., Fanlight Productions, Breathing Lessons: The Life and Times of Mark O’Brien (1996) Yu, Jessica, Fanlight Productions Disability Culture Rap: Disability Identity and Culture (2000) Wade, Cheryl Marie & Smith, Jerry, Tools for Change If I Can’t Do It… (1998) Brock, Walter, Fanlight Productions King Gimp (2000) Hadary, Susan Hannah, HBO My Country: The Civil Rights Movement That Created the Americans with
Disabilities Act, Ward & Associates, Program Development Associates Storm Reading (1996) Marcus, Neil, Dystonia Foundation Tell Them I’m a Mermaid (1983) Daley, E., & Kaplan, C., Embassy Telecommunications, 1901 Avenue of the Stars, Los Angeles, CA 90067 Twitch and Shout, a New Day film, Chiten, Lauren, Fanlight Productions Vital Signs: Crip Culture Talks Back (1995) Mitchell, David T. and Snyder, Sharon L., Fanlight Productions When Billy Broke His Head...and Other Tales of Wonder (1994) Golfus, Billy and Simpson, David E., Fanlight Productions
Community/Culture
Short entries on everything to do with the Disability Rights Movement.
A useful overview of disability that is valuable for anyone involved with disability issues.Disability Studies
A strong overview of the "construction" of disability and the resulting
ramifications.
A collection of essays on disability and statistical analysis that
reveals how false stereotypes pollute much disability research.
A wonderful combination of personal disability discovery and
sociological analysis. Considered by many disabled people as
a key to understanding the personal and the political. (republished)
An accessible and pioneering study of the way that people are disabled
by society. Includes discussion of the role of cultural representation
and social barriers, and the problems with feminist research on community
care.
(out of print)Family, Children, & Relationships
One of the few books on sexuality and disability. (out of print)
Well-written exploration of disability, pregnancy, and reproductive rights.
An intimate, honest portrayal of a woman with a significant disability as she grapples with the lifelong issues of self-worth, sexuality, family value, relationships, and motherhood.History
A detailed, fascinating, radio documentary on the history of disability in the United States. (Available on tape and excerpts on RealAudio at www.npr.org/programs/disability)
Gallagher documents the history of the German T-4 project which killed 200,000 disabled people in the name of eugenics during the Third Reich.
Valuable for its historical perspective on the formation of disability social construct and its affect on US government policy.
How FDR was changed by disability, the lengths he used to conceal it, and the legacy of the "cured cripple." Gallagher argues that FDR’s social consciousness is a direct result of his disability experiences.
The welcome English translation of this European perspective on the historical basis for disability.
One of the first books on disability rights and self-determination. Has a strong international and Canadian perspective. (out of print)
Probably the most accessible accounting of the contemporary disability rights movement, although from a "great men" perspective.
The key text on the Deaf and their history.
At last, the cogent, clear, and ground-breaking work of Paul Longmore is collected in one book.Identity
The intertwining identities of being Jewish, disabled, and gay are the subject of this memoir.
First person account of exceeding society’s expectations by two friends.
Dark humor about spinal cord injury and addiction. The final three chapters outline the difficulties and frustrations of living on government disability support.
Another first-person account of life from a wheelchair. Hockenberry’s insight, humor, candor, and fascinating career raise this text to the next level.
First person account of autism that has helped change how we regard people with autism.
Kuusisto writes about his struggle to deny his disability and his eventual understanding and accommodation to it.
An exploration of the culture, politics, and neurology of American Sign Language and its place in the Deaf community.
Valuable compilation of contemporary disability writings from an insider's perspective.
Essays on living with a disability in an illogical world.Policy/Civil Rights
An accessible account, drawing on the perspectives of British disabled activists on the rise of the civil rights movement in UK, summarizing the history and the issues.
An undergraduate text reviewing the sociology of disability, which will be of interest to a general audience. Clear, comprehensive and the best place for any academic or student to start reading.
First American text to document and synthesize the growth of the disability rights movement.
An insider’s view of the Americans with Disabilities Act, capturing the spirit and intent of the law. (out of print)
The Disability Rag has been the voice for the politicized disability community. All of the key issues of the past fifteen years are debated in these pages.
A significant turning point in disability studies that still has powerful insights about the disability experience. (out of print)Radio
A truly international perspective on disability. International on short-wave frequencies 6975, 15050 and 21460, Mondays at 19:00 UTC, Fridays at 17:00 UTC and Saturdays at 22:00 UTC, each with a second broadcast eight hours later. (http://www.independentliving.org/radio/index.html)
Contemporary issues in disability that does not shy away from the controversial or un-hip. (Available on RealAudio at www.thestrengthcoach.com/archive.html)Movies
An insider's view of a blind, Iranian boy's life including a residential school for the blind. (English sub-titles)
Still controversial twenty years later for its portrayal of the effects of the Viet Nam conflict on veterans, their families, and society. A good insider view of rehabilitation and living as a wheelchair user. (VHS-closed captioned)
A family animation from Pixar that had its disability plot ignored in reviews and advertising. The scene when one disabled character, Gill, mentors another, the title character Nemo, is unprecedented. for one disabled character mentoring another.
Pauline Kael, the New Yorker’s long time critic, described the actors as “creatures” who used their “physical deformity for ...horror” but this movie's portrayal of disability community and reaction to exploitation is remarkably powerful and affirming.
A remarkably straight forward look at coming of age for a young woman with CP in Mexico. Gaby’s loves, flirtations, and crushes are artfully explored.
A documentary of San Francisco bluesman, Paul Pena's search for fellow throat singers in China. Pena's blindness is central to the beginning of the story, but ultimately is peripheral.
Finally, a movie that got critics to see disability not as a tragedy but as an opportunity. The movie show the ruby players' competitiveness and occasional obnoxiousness is a result of their personalities not their disability experiences.
Daniel Day Lewis brings Christie Brown’s autobiography to life with a savage intensity fueled by Day Lewis experience of staying in character throughout the course of filming. (DVD & VHS-closed captioned, & VHS Spanish captioned)
An accurate portrayal of the grief, shock, and loss that often comes with a new spinal cord injury while in a rehab hospital. (VHS-closed captioned)World Wide Web & Internet
This on-line exhibit shows some of the best examples of the vital artistic, political, and cultural expression of the disability community. Caution, there are many high definition images on the site, so downloads might be lengthy. (http://www.vsarts.org/gallery/exhibits/disability/index.html)
The companion web site to the four hour disability history radio program on NPR. The site contains excellent primary source material. (www.npr.org/programs/disability)
Pragmattic and realistic about the advantages and disadvantages of technology for disabled people, William's columns highlights computers and other electronic devices. National Organization on Disability, (http://www.nod.org/index.cfm?fuseaction=Page.viewPage&PageID=1302)
An extensive, searchable database of events in disability history. Institute on Disability. (http://bss.sfsu.edu/disability/dateline.html)
Based in the United Kingdom with a world wide focus this list focuses on disability research—both theoretical and practical from a social model perspective. To join e-mail to: JISCmail@JISCmail.ac.uk: with the following message:
join disability-research your name
Past messages are available in a searchable archive at http://www.jiscmail.ac.uk/cgi-bin/wa.exe?S1=disability-research
A window into the untold disability history. (www.disabilityhistory.org)
A bimonthly web zine in English and Spanish focusing on an international perspective of independent living and disability. It has a strong arts and culture section plus international politics with a distinct point of view. (http://www.disabilityworld.org/)
A list-serv discussing disability in the humanities. To subscribe to DS-HUM, send a message in the following format to listproc@listproc.georgetown.edu
subscribe ds-hum Yourfirstname Yourlastname
More information is available at: http://www.georgetown.edu/crossroads/interests/ds-hum/index.html
Works within the humanities (rather than social sciences) that explore disability. (http://www.georgetown.edu/crossroads/interests/ds-hum/ds-bib.html)
An electronic newsletter with the latest news, legislative alerts, and current problems in the disability community. To subscribe send a message to: majordomo@jfanow.org with the following in the body of the message:
subscribe justice
Archives are available at: http://www.jfanow.org/jfanow/Publications
Mixing news, humor, and attitude, The Mouth covers the struggles for disability identity and freedom. (http://www.mouthmag.com/subform.htm)
This glossy, lifestyle magazine has equipment reviews, sex and relationship advice, profiles, and the arts. P.O. Box 220, Horsham, PA 19044 (http://www.newmobility.com/)
This magazine (formerly the Disability Rag) has been where the disability rights community has found its news, argued its policies, and celebrated its successes. Avocado Press PO Box 145 Louisville, KY 40201. (http://www.ragged-edge-mag.com/) Videos
Six disabled comics are featured interpreting the disability experience.
The Academy Award winning documentary of the late disability poet and author Mark O’Brien. Mark’s passionate and incisive poems are highlighted. (Open captioned)
Wade’s expanded version of her ground-breaking and celebratory "Disability Culture Rap" paired with images from disability history and the disability rights movement. Includes facilitator's manual. (Closed captioned)
This is an unflinching portrait of a complex and cantankerous disabled man, Arthur Campbell, as he pushes for independence and an equal slice of the American pie.
An extensive look at the commitment, passion, and struggles of a disabled artist. An Academy Award winner.
A powerful video on the parallels between the Disability Rights Movement
and the African American civil rights struggle of the 1960s. out of
print
Written and performed by Neil Marcus, this one man show (with two aides) shows the expressiveness of his atypical body and intellect.
A documentary of Victoria Lewis’ ground breaking theatrical troupe exploring disabled and women’s identity.
Humor and gritty reality highlight this documentary on people living with Tourette’s.
Disability culture is highlighted by some its prime exponents. Theater, monologues, humor, and stories help to illustrate disability pride and culture. (Open captioned)
One man’s search for his new disability identity. Many of the leading disability activists are profiled. (Closed or open captioned)
December 23 , 2005
Edited by Anthony Tusler with Betsy Bayha, Elaine F. Brodey, Steven E. Brown, Melanie Fry, Tari Susan Hartman, Edward J. Heaton, Kathlene McCarthy-Barnett, Zara Buggs Taylor, Greg Smith, and Linda Wall